奚凯雯,罗雯懿.先心病过敏患儿家庭喂养知、信、行的现状研究及分析[J].上海护理,2019,19(4):
先心病过敏患儿家庭喂养知、信、行的现状研究及分析
Investigation and analysis on feeding knowledge, attitude, practice among the primary caretakers of the children with congenital heart disease and allergic disease
DOI:
中文关键词:  营养  知信行  过敏  先天性心脏病  儿科
英文关键词:Nutrition  KAP  Allergy  Congenital heart disease  Pediatric
基金项目:上海市护理学会科研课题面上项目(基金编号2017MS-B07)
作者单位E-mail
奚凯雯 上海交通大学医学院 xikaiwenp@live.cn 
罗雯懿* 上海交通大学医学院附属上海儿童医学中心 luowenyi@scmc.com.cn 
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中文摘要:
      目的:了解先心病过敏患儿营养状况、照顾者知信行水平及其影响因素,通过此次调查研究能够在先心病患儿的护理过程中有针对性的对家属实施健康教育,为以家庭为中心的营养支持护理干预模式的构建与应用提供数据及理论支持。方法:围绕知信行理论模式,自行设计过敏先心病患儿父母喂养相关知信行调查问卷,并使用自设问卷对151位过敏的先心病患儿及家庭主要照顾者喂养知识、态度、行为的现状进行调查。结果:经该研究发现,先心病过敏患儿营养不良率占42.38%,患儿家庭主要照顾者喂养知识掌握情况较差,知识得分为良(80%)及以上者仅占3.31%。喂养态度得分与患儿过敏症状表现、营养状况及居住城市等的不同导致的差异有统计学意义(P<0.05),而喂养知识得分及知信行总分与父母过敏情况、文化程度等有关(P<0.05);知识、态度、行为之间均有线性相关关系,其中态度与行为中等程度相关(P<0.05)。结论:总体来看,先心病患儿主要照顾者知信行水平受到患儿过敏症状、营养状况、居住城市、父母过敏情况、文化程度等因素影响。为了对先心病过敏患儿实施有效营养支持,应以家长的知信行水平为依据,根据患儿照顾者及家庭背景调整营养支持方案,实施有针对性、个性化的健康宣教及支持。
英文摘要:
      Aims: This study can be carried out in the care process of children with congenital heart disease (CHD) and allergy in the implementation of health education, so that the families of the children can take the effective participation in the care process. And this study was to support the family-centered nutritional care intervention’s model construction and application by providing data and theoretical support. Method: Based on the theoretical model of Knowledge,Attitude and Practice(KAP), we designed the questionnaire to evaluate the primary caretaker's feeding situation who mainly take care of CHD children with allergic disease. It has been proved that the questionnaire had high reliability and fair validity through pre - test. 151 patients and their caregivers were selected in the present study to examine both the nutritional status of CHD children with allergy, the status quo of KAP of the primary caregivers and their influencing factors. Results: The study found that 42.38% CHD children with allergy suffered malnutrition 3.31% and their main caregiver’s knowledge score above 80%. There were problems in cognition of the main caregiver of the children, knowledge score above 80%. The feeding attitude score was related to the situation of children’s allergy symptoms,nutrition and living city(P <0.05). The feeding knowledge score and the total score of KAP were closely related to the situation of parents’allergtic disease ,the degree of education(P <0.05). On the other hand, there was a linear positively correlation between knowledge, attitude and behavior, especially, attitude and behavior were moderately correlation(P <0.05). Conclusion: The factors including children’s allergic symptoms, nutritional status, living city, parents' allergic disease and educational level influenced the KAP status of the primary caregivers, who take care of the CHD children with allergy disease. In order to conduct effective nutritional support for CHD children with allergy, the caregivers’ background should be concerned to adjust the individual nutritional support program, and make the implementation of targeted, personalized health education and mental support based on the KAP.
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