| 苌凤水#,解海霞#,杨玉慧,张佳,王惠芳,吴爱荣,沈沉,林佩佩,陈刚,吕军.上海社区脊髓损伤患者主要照顾者的照顾影响和后果分析[J].上海护理,2019,19(12): |
| 上海社区脊髓损伤患者主要照顾者的照顾影响和后果分析 |
| Study on the impact of the major caregivers’ care on patients with spinal cord injury in Shanghai communities |
| DOI： |
| 中文关键词: 脊髓损伤患者 主要照顾者 社区 照顾负担；影响 上海 |
| 英文关键词:Individuals with spinal cord injury Major caregivers Community Caregiver burden Impact Shanghai |
| 基金项目:自然科学基金(71673052)；国家留学基金委项目(201506105030)；浦江学者项目(17PJC003)；上海市残联系统重点学科建设项目([2015]139号)；国家社会科学基金重大项目(No.17ZDA078)；复旦大学上海医学院高水平地方高校试点建设项目——一流公共卫生与预防医学学科建设 #,解海霞2#,杨玉慧1,张佳2,王惠芳2,吴爱荣2,沈沉2,林佩佩2,陈刚1,吕军1 |
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| 中文摘要: |
| 目的 分析上海市社区脊髓损伤患者101名主要照顾者照顾负担并分析其影响因素。方法 在上海市养志康复医院（上海市阳光康复中心）参加康复训练的社区脊髓损伤患者照顾者中开展问卷调查，调查内容是个人基本情况和照顾情况、照顾影响和后果、自评健康状况和健康状况变化。结果 调查了101名主要照顾者，78.2%每天照顾超过12小时，平均照顾9.7年。由于照顾患者，74.3%照顾者健康状况变差，72.3%自己时间受到较大影响，71.3%变得非常节俭，67.3%不得不装修房子或重新安排家具，59.4%的停止工作，84.2%感到有精神压力，65.3%的没有安全感。多因素分析发现，女性与男性相比受到负面影响更多（OR=6.78，P=0.01），且健康状况变差更加普遍（OR=6.86，P<0.01），退休也是照顾者健康状况变差的影响因素（OR=4.98，P=0.04）。结论 上海社区脊髓损伤患者的主要照顾者照顾负担较大。建议加大对社区脊髓损伤患者主要照顾者，特别是女性和退休照顾者的社会支持。 |
| 英文摘要: |
| Objective To analyse the caregiver burden and its influencing factors of 101 major caregivers of individuals with spinal cord injury (SCI) in Shanghai communities. Methods The major caregivers of individuals with spinal cord injury from 16 districts in Shanghai who participated rehabilitation training in Shanghai Yangzhi Rehabilitation Hospital (Shanghai Sunshine Rehabilitation Center) were investigated with the self-designed questionnaires, which included personal and care characteristics, the impact of care and self-assessment health status. Results 101 major caregivers were surveyed, 78.2% of which spent more than 12 hours a day on care in average 9.7 years. As a result of caring for individuals with SCI, 74.3% of the caregivers’ showed worsened health, 72.3% of whose own time was greatly affected, 71.3% of which became very thrifty, 67.3% of which had to decorate the house or rearrange furniture, and 59.4% of which gave up job, 84.2% of the caregivers felt mental pressure, and 65.3% of them felt insecure. Multivariate analysis showed that women were more negatively affected (OR=6.78, P=0.01), and the phenomenon of worse health condition was more common than male major caregivers (OR=6.86, P<0.01). Retirement was also an influencing factor of worse health of the caregivers (OR=4.98, P=0.04). Conclusion The major caregivers of individuals with spinal cord injury in Shanghai communities suffered from heavy caregiver burden. It was recommended to increase social support for the major caregivers, particularly the retirees and the female people, in communities. |
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